BIG THANK YOU...

I just wanted to extended a GIANT THANK YOU to all 44 donators to James fund...  we up to $2,430 and we have 29 days left of this campaign.  

I will post the link to the new campaign closer to the end of this one.  I am not allowed to extend the campaign, I just have to create a new one. 

Ball Time

Today James got onto a work-out call for the 1st time with me.  He has tried it once with OT but 1st time with me and he did a good job!! He did some head lifting... little by little he will get stronger with more ball time.

7th Heaven

Today Jeff, and I took James' to his 1st concert.  We saw my friends band 7th Heaven and we even got backstage passes to meet the band.  They were such wonderful men, and might be able to help us meet our goal of getting a new ride.  Here are a few pictures...

 Me and my mommy

 My backstage pass...

My new 7th Heaven t-shirt!

Inspiration...

1,000.00

We have ALMOST met our 1st goal of 1,000.00 for James new ride.  Please share his page with any one and everyone you see.  Let's get it out to the media, news stations, radio stations, new papers... anything you can think of.  Here is the link again..

~Stacy

 http://www.indiegogo.com/projects/135849?c=comments&a=760336

Doctor apt...

Well today was the day Jeff and I have been waiting for since June 6th when we went for a MEG scan.. http://www.alexianbrothershealth.org/services/neurosciences/services/meg-brain-mapping/ 

We met with the doctor to talk about the test results and if brain surgery is an option for James in the near future..... of course the hospital got hit pretty hard from the storm last night and this morning so the computers were down.  Not sure why the doctor didn't look at the MRI, MEG scan and VEEG results, last week or even Tuesday!!!  

We did talk about a possible VNS but for now we upped one med and reducing another... Only time will tell <3 http://us.cyberonics.com/en/vns-therapy/

Hugs

Spreading the word....

Spreading the word, one person at a time!!! Tonight the Ryan Dempster Foundation posted about James on their Facebook page: https://www.facebook.com/notes/ryan-and-jenny-dempster-family-foundation/get-james-a-new-ride/425036570869042  I am not sure who saw the note or if it will drum up some more viewers to my campaign but was AWESOME of them to even post.

Do you want a sticker??? Emily has a sticker!!!!

http://www.indiegogo.com/projects/135849?show_todos=true&a=760336

July 17th...

Today's blog is going to be simple and to the point....


Thursday we meet with our neurologist to talk about all the tests we have been doing to find out what is gong on in James little brain.  We will hopefully talk about upping a med he is on and if James is a candidate for brain surgery!!  YOU READ THAT RIGHT... BRAIN SURGERY!! No one wants their child to have their brain worked on but if it will stop these seizures... Jeff and I are open to this idea.  


We will have to travel from Chicago IL to Cleveland Clinic in OH.. that is where this simple blog entry comes on.  We are running a campaign to get James a new ride, check it out and spread the word....   http://www.indiegogo.com/projects/135849?a=760336

Really???

I was told last week that I am being to pushy... I am looking needy, because I am asking for funds to buy a new handicap vehicle for my son.  For gosh sake, I am not asking for a BMW or Porsche!!  I am looking to find some help with getting my son a new, SAFE vehicle for him to travel to and from doctors, hospitals, to see family and school.

James is currently 33lbs and 36in long... oh and still rear facing in his car seat.  I would rather have a broken foot than a broken head because he has no head control and if I put him forward facing his head bounces around to much.  I know I will eventually have to flip him but now is not that time.

So here I am trying to blog about James and the struggles I am having trying to find ways to get James campaign page out to the public.  I have sent e-mails to news stations, news papers, radio personalities and local car deals. I even did a phone interview for a local radio station that might or might now run the story.  I guess the station was bought out and the format changed.  We will just have to wait and see.  For now, I will blog and update his Fans of James facebook page... make sure to check it out and become a follower.


XO's Stacy