Today's blog is going to be simple and to the point....
Thursday we meet with our neurologist to talk about all the tests we have been doing to find out what is gong on in James little brain. We will hopefully talk about upping a med he is on and if James is a candidate for brain surgery!! YOU READ THAT RIGHT... BRAIN SURGERY!! No one wants their child to have their brain worked on but if it will stop these seizures... Jeff and I are open to this idea.
We will have to travel from Chicago IL to Cleveland Clinic in OH.. that is where this simple blog entry comes on. We are running a campaign to get James a new ride, check it out and spread the word.... http://www.indiegogo.com/projects/135849?a=760336
Tuesday, July 17, 2012
Really???
I was told last week that I am being to pushy... I am looking needy, because I am asking for funds to buy a new handicap vehicle for my son. For gosh sake, I am not asking for a BMW or Porsche!! I am looking to find some help with getting my son a new, SAFE vehicle for him to travel to and from doctors, hospitals, to see family and school.
James is currently 33lbs and 36in long... oh and still rear facing in his car seat. I would rather have a broken foot than a broken head because he has no head control and if I put him forward facing his head bounces around to much. I know I will eventually have to flip him but now is not that time.
So here I am trying to blog about James and the struggles I am having trying to find ways to get James campaign page out to the public. I have sent e-mails to news stations, news papers, radio personalities and local car deals. I even did a phone interview for a local radio station that might or might now run the story. I guess the station was bought out and the format changed. We will just have to wait and see. For now, I will blog and update his Fans of James facebook page... make sure to check it out and become a follower.
XO's Stacy
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