Tastefully Simple...

Tastefully Simple fundraiser for the month of January to help get James a new handicap van.




One of my fans, Nicole is "hosting this event" ... All you have to do it go to my website: www.tastefullysimple.com/web/ndenk ... view the e-catalog, and order right online!! All orders will go right to your house too!!

Before you check out it will ask you if your order is associated with a party say ... YES then search for Stacy Fulkerson.

Please feel free to ask me any questions you may have, tsnicole1@gmail.com

Santa

Last night Jeff and I took James to go see Santa at this special event put on by a great organization called http://specialkidsday.org/.  Every year they put on an event for special needs families.  They give you gifts, food, face painting, you can listen to music and get your picture taken with Santa.  This is out 2nd year going and it was PACKED just like last year.  They might need to think about getting a bigger venue soon!! 

Here is the picture we took as a family with Santa.  Sadly James has no neck, but it was a nice family experience!!

Been awhile...

Hello friends!!
   It has been a while since I sat down to blog about James.  Since we last spoke we had a few fundraisers going.  I am pleased to inform you that we made a little over $500 for both events!!!  Every little but helps towards James new van.  We have been speaking with the company that will be helping us.  There have been a few new vans for sale around 43,000, so that helps us get an idea what we need to come to the table with.

James has been home sick all of November and finally went back to school on Monday.  He ended up going into the hospital with pneumonia!!  We knew it was going to happen but this year it struck us earlier than Thanksgiving... November 3rd to be exact.  We were in the PICU for about 4 days and 2 days on regular PEDs floor.

  


We had a great Thanksgiving!! I made James a turkey shirt.  Makes sure to check out my Facebook page: www.facebook.com/stacyraecreations
 

Today 12/5/12 we are going to meet Santa at a special event for special needs children and their families.  I will make sure to post a picture here!!

Bracelet for SALE

Hello my followers!!!  I wanted to share with you a bracelet I created for James New Ride.

Please think about buying one for yourself, your sister, mother, daughter, niece, or best friend!!!

T-shirts

The T-shirts have arrived!!!!  Rollin' For James short sleeve shirts, long sleeve shirts and pull over sweatshirts have arrived!!!!  Orders NEED to be place by November 15th...

 http://www.3elove.com/pages/rollin-for-james-fundraiser

VNS

James had his VNS (http://us.cyberonics.com/en/vns-therapy-for-epilepsy/patients-and-families) inserted on Monday September 24th and he seems very uncomfortable.  He can't be on his belly just yet but we will be trying on Thursday or Friday.  He has been on oxygen to keep his stats up because he can't be on his belly to drain and open his airway. 

Here are a few pictures of James:

 In recovery with his new monkey Red

 Neck bandage

Chest bandage

VNS implant

On September 24th James will b getting a VNS implanted into his chest and neck. This is a simple surgery and should b home that night. Here is a link from the company who makes it.

VNS

Garage sale!!!

A giant thank you goes out to all those who donated to my aunts garage sale!!

Thirty-One event

There is an online shopping event for James till the 13th. Please go check it out: http://www.mythirtyone.com/shop/catalog.aspx?eventId=E2201790&from=DIRECTLINK

Campaign...

Thank you to everyone who donated to our original campaign... we were able to raise half of what we were looking to raise.

Let's continue to support James in getting his new ride!!  Here is the link to the new campaign, check it out and spread the word!!

http://www.indiegogo.com/fansofjamesjackson?a=760336

Video

 Today I made James a 3rd birthday video.  This video picked up where the 1st birthday left off... Hope you enjoy it!!

Less than a week...

Where did the time go??? 

In less than a week, James will turn 3. I can't believe this little peanut will be 3.

Saturday we are having a Dr. Seuss birthday party!!  

Full of  theme food, take home goodies, balloons, a cool Cat in the Hat 3D cake and of course friends and family sharing in the celebration.  James has come a long way since his NICU days.

 

9 more days...

Only 9 more days left on this campaign!! http://www.indiegogo.com/projects/135849

That means 9 more days till my little man is 3!!!! He will attending preschool after Labor Day for 2.5 hours. Time flies....

16 more days...

Only 16 more days till James turns 3 and his first campaign ends. Think about maybe making a donation. Every little bit counts and adds up!!


http://www.indiegogo.com/projects/135849?c=home

GARAGE SALE

GARAGE SALE NEXT WEEKEND!! LOTS OF BOYS CLOTHES, SHOES, TOYS, BLANKETS, JACKETS, AND SO MUCH MORE!!!  MOST OF IT IS JUST $1 FOR JAMES NEW RIDE!!

$3,635 as of August 6!!

BIG THANK YOU...

I just wanted to extended a GIANT THANK YOU to all 44 donators to James fund...  we up to $2,430 and we have 29 days left of this campaign.  

I will post the link to the new campaign closer to the end of this one.  I am not allowed to extend the campaign, I just have to create a new one. 

Ball Time

Today James got onto a work-out call for the 1st time with me.  He has tried it once with OT but 1st time with me and he did a good job!! He did some head lifting... little by little he will get stronger with more ball time.

7th Heaven

Today Jeff, and I took James' to his 1st concert.  We saw my friends band 7th Heaven and we even got backstage passes to meet the band.  They were such wonderful men, and might be able to help us meet our goal of getting a new ride.  Here are a few pictures...

 Me and my mommy

 My backstage pass...

My new 7th Heaven t-shirt!

Inspiration...

1,000.00

We have ALMOST met our 1st goal of 1,000.00 for James new ride.  Please share his page with any one and everyone you see.  Let's get it out to the media, news stations, radio stations, new papers... anything you can think of.  Here is the link again..

~Stacy

 http://www.indiegogo.com/projects/135849?c=comments&a=760336

Doctor apt...

Well today was the day Jeff and I have been waiting for since June 6th when we went for a MEG scan.. http://www.alexianbrothershealth.org/services/neurosciences/services/meg-brain-mapping/ 

We met with the doctor to talk about the test results and if brain surgery is an option for James in the near future..... of course the hospital got hit pretty hard from the storm last night and this morning so the computers were down.  Not sure why the doctor didn't look at the MRI, MEG scan and VEEG results, last week or even Tuesday!!!  

We did talk about a possible VNS but for now we upped one med and reducing another... Only time will tell <3 http://us.cyberonics.com/en/vns-therapy/

Hugs

Spreading the word....

Spreading the word, one person at a time!!! Tonight the Ryan Dempster Foundation posted about James on their Facebook page: https://www.facebook.com/notes/ryan-and-jenny-dempster-family-foundation/get-james-a-new-ride/425036570869042  I am not sure who saw the note or if it will drum up some more viewers to my campaign but was AWESOME of them to even post.

Do you want a sticker??? Emily has a sticker!!!!

http://www.indiegogo.com/projects/135849?show_todos=true&a=760336

July 17th...

Today's blog is going to be simple and to the point....


Thursday we meet with our neurologist to talk about all the tests we have been doing to find out what is gong on in James little brain.  We will hopefully talk about upping a med he is on and if James is a candidate for brain surgery!!  YOU READ THAT RIGHT... BRAIN SURGERY!! No one wants their child to have their brain worked on but if it will stop these seizures... Jeff and I are open to this idea.  


We will have to travel from Chicago IL to Cleveland Clinic in OH.. that is where this simple blog entry comes on.  We are running a campaign to get James a new ride, check it out and spread the word....   http://www.indiegogo.com/projects/135849?a=760336

Really???

I was told last week that I am being to pushy... I am looking needy, because I am asking for funds to buy a new handicap vehicle for my son.  For gosh sake, I am not asking for a BMW or Porsche!!  I am looking to find some help with getting my son a new, SAFE vehicle for him to travel to and from doctors, hospitals, to see family and school.

James is currently 33lbs and 36in long... oh and still rear facing in his car seat.  I would rather have a broken foot than a broken head because he has no head control and if I put him forward facing his head bounces around to much.  I know I will eventually have to flip him but now is not that time.

So here I am trying to blog about James and the struggles I am having trying to find ways to get James campaign page out to the public.  I have sent e-mails to news stations, news papers, radio personalities and local car deals. I even did a phone interview for a local radio station that might or might now run the story.  I guess the station was bought out and the format changed.  We will just have to wait and see.  For now, I will blog and update his Fans of James facebook page... make sure to check it out and become a follower.


XO's Stacy

Time line...

April 2010: James was on ACTH for 6 weeks and there was some improvement bit not enough for my doctor to keep him on it. He is worried about causing any heart damage. That is one good thing about James, his heart is in good shape for the most part.

July 2010: James is on 3 anti-seizure meds... Keppra, Clonzapam and Topamax... we will see how it goes, for now he is just sleeping so much.

Oct 2010: James is on 4 meds... Keppra, Clozapam, Topamax and now Sabril!!

Nov, 2010: James is off Sabril & Keppra... next to try is Banzel (when James feels better)

August 29th, 2010: JAMES TURNS 1!!!

Sept 2010: James was diagnosed with Cerebral Palsy

May 2011: James is still having seizures like craZy so we started him the ketogenic diet (http://www.charliefoundation.org/) to see if it will help. He has been on it for almost 2 months, and we do not see much change, he is actually gotten worst. We will give it a few more months, and if this does not work we look into something else... maybe a VNS (http://us.cyberonics.com/en/vns-therapy/)

August 2011, JAMES TURNED 2!! We bought a house, no more 2nd floor condo with 15 stairs. We are now in a ranch house.

October 2011: The diet did not work, James lost 6lbs. We are back to Pediasure and upped one of his meds

January 2012: Seizure monster has been showing his face less. We are in the works of getting a stroller/wheel chair for James. Once we get a chair, I will have to figure out how we are going to get around to doc appointments. I am unsure if the chair collapse or not. Only time will tell :0)